There are 9 known cases of NPCD in Australia that are currently recieving the drug MIGLUSTAT / ZAVESCA as a treatment option on a "compassionate use" status.
The Australian NPCD Foundation Inc and the drug company Actelon are submitting another request to the Government for PBAC (Pharmaceutical Benefits Advisory Committee) approval.
We have just been advised that we have a deadline of 5th October 2011.
Please read this statement from Mandy Jacobs, mother of 2 boys that have NPCD.
"I have two weeks today to try and convince the Australian government that ... continue »
all the signatures
- 20/2/12431. Felicity Kelly (unverified)
I support this petition - A good friend has this disease. :( - 15/2/12430. Naomi McDonald
I support this petition - 1/2/12429. Rhoda (unverified)
I support this petition - 6/11/11428. Carolyn Richards
I support this petition - 6/11/11427. Rebecca Stewart
I support this petition - 6/11/11426. Kristina Royall
I support this petition - 5/11/11425. wendy Bond
I support this petition - 25/10/11424. Rebekah Corrigan (unverified)
I support this petition - 17/10/11423. David Whybird
I support this petition - 16/10/11422. izy dickens
I support this petition - 16/10/11421. Bernadette Burdett (unverified)
I support this petition - 10/10/11420. Wendy Humphreys
I support this petition - 9/10/11419. Peter Woods (unverified)
I support this petition - 8/10/11418. Dee Reese (unverified)
I support this petition - 8/10/11417. Glenda wellard (unverified)
I support this petition - 7/10/11416. Giselle Quesada
I support this petition - 7/10/11415. Deb Ellis
I support this petition - 7/10/11414. Bec Mapson
I support this petition - 6/10/11413. Karthigesu Subendran (unverified)
I support this petition - 6/10/11412. Thiru Thirunaukarasu (unverified)
I support this petition - 6/10/11411. Peter Gibbs
I support this petition - 6/10/11410. Steve Avery
I support this petition - 6/10/11409. Kathleen Jackson (unverified)
I support this petition - 6/10/11408. Steven Attard (unverified)
I support this petition - 6/10/11407. George Anderson
I support this petition - 6/10/11406. jose jorge (unverified)
I support this petition - 6/10/11405. Odette Ladette (unverified)
I support this petition - 6/10/11404. Matthew Vermeer (unverified)
I support this petition - 6/10/11403. Ashlee Vermeer (unverified)
I support this petition - 6/10/11402. Ed vermeer
I support this petition - 6/10/11401. Lena Vermeer
I support this petition - 5/10/11400. Steve Flanagan
I support this petition - 5/10/11399. Judi Cowley
I support this petition - 4/10/11398. Tim Birnie (unverified)
I support this petition - 4/10/11397. Howard Malkin
I support this petition - 4/10/11396. jeannette vander putten gillenkirk (unverified)
I support this petition - 4/10/11395. Jan Novotny
I support this petition - 4/10/11394. Marg Constantine
I support this petition - 4/10/11393. Gisele Waldo
I support this petition - 3/10/11392. Ross Capern
I support this petition - 3/10/11391. hugh edmondson
I support this petition - 3/10/11390. Robert Biro (unverified)
I support this petition - 3/10/11389. Jill Flinton
I support this petition - 3/10/11388. Warren Hall
I support this petition - 3/10/11387. Judy Rielley (unverified)
I support this petition - 3/10/11386. MAGGIE DAVIES (unverified)
I support this petition - 3/10/11385. Mary King
I support this petition - 3/10/11384. Donna Robinson (unverified)
I support this petition - 3/10/11383. fernanda isabel morais
I support this petition - 3/10/11382. Wayne Sollars
I support this petition - 3/10/11381. Ally Sollars
I support this petition - 3/10/11380. Leonie Pascoe (unverified)
I support this petition - 3/10/11379. Joshua Lee
I support this petition - 3/10/11378. Brenda Argus
I support this petition - 3/10/11377. martin dirks
I support this petition - 3/10/11376. Peter Phillips
I support this petition - 3/10/11375. Jennifer Smith
I support this petition - 2/10/11374. Judith Van Velsen
I support this petition - 2/10/11373. Rebecca Chilcott
I support this petition - 2/10/11372. Annette SAYLE
I support this petition - 2/10/11371. Charlotte Chamier
I support this petition - 2/10/11370. Jacqui Bushaway
I support this petition - 2/10/11369. Irene Bushaway
I support this petition - 2/10/11368. James Fraser-Byass
I support this petition - 2/10/11367. Mon Brumby
I support this petition - 2/10/11366. Kellie Jolly
I support this petition - 2/10/11365. Sophie Turner
I support this petition - 2/10/11364. Leanne Jones (unverified)
I support this petition - 2/10/11363. Shay Mathews
I support this petition - 2/10/11362. Donna Garland
I support this petition - 2/10/11361. NGAIRE HAWKING (unverified)
I support this petition - 2/10/11360. Mary Villani
I support this petition - 2/10/11359. Carmel Apicella (unverified)
I support this petition - 2/10/11358. karen cuthbert
I support this petition - 1/10/11357. alicia keane
I support this petition - 1/10/11356. Nicole Ford
I support this petition - 1/10/11355. Renee menhennet (unverified)
I support this petition - 1/10/11354. Gavin norman (unverified)
I support this petition - 1/10/11353. Kelly Smith
I support this petition - 1/10/11352. Joseph Basile
I support this petition - 1/10/11351. Prue Hembury
I support this petition - 1/10/11350. Leonie Price
I support this petition - 1/10/11349. Kathryn Hunt (unverified)
I support this petition - 1/10/11348. Nick clark (unverified)
I support this petition - 1/10/11347. Lisa clark (unverified)
I support this petition - 1/10/11346. Wouter Dirks (unverified)
I support this petition - 1/10/11345. Anne Loggie
I support this petition - 1/10/11344. Allison Love
I support this petition - 1/10/11343. michael lewis (unverified)
I support this petition - 1/10/11342. Marije Dirks
I support this petition - 1/10/11341. Adrian Kearton
I support this petition - 1/10/11340. Guy Muller
I support this petition - 1/10/11339. Lisamaree Dobbin (unverified)
I support this petition - 30/9/11338. Bec Francis
I support this petition - 30/9/11337. Anne Turley
I support this petition - 30/9/11336. Andrew Smith
I support this petition - 30/9/11335. Beverley Ferris
I support this petition - 30/9/11334. Carl Hitchens
I support this petition - 30/9/11333. Paula Cristina Martins Martins (unverified)
I support this petition - 30/9/11332. Helen Carter
I support this petition